Patient representatives from three patient organisations have joined the HIPPOCRATES consortium to ensure the patients’ perspectives are preserved and prioritised in all research activities to maximise the project’s impact.
HIPPOCRATES is also endorsed by IFPA, the International Federation of Psoriasis Associations, and the National Psoriasis Foundation of the United States.
The involved organisations are:
- the EULAR (European Alliance of Associations for Rheumatology) Standing Committee of People with Arthritis/Rheumatism in Europe (PARE)
EULAR is the organisation which represents people with rheumatic and musculoskeletal diseases (RMDs), health professionals and scientific societies of rheumatology of Europe. EULAR aims to reduce the impact of RMDs on the individual and society and to improve the treatment, prevention and rehabilitation of RMDs. To this end, EULAR fosters excellence in education and research in the field of rheumatology. It promotes the translation of research advances into daily care and fights for the recognition of the needs of people with RMDs by the governing bodies in Europe. Integrated in EULAR, PARE is the network of 37 national organisations of People with Arthritis/Rheumatism across Europe, united to ensure the voice of people with RMDs is heard and has influence among decision makers, and to create powerful alliances that will make a difference to their lives.
- the European Federation of Psoriasis Patients’ Associations (EUROPSO) and
Pan-European disease-specific organization Europso founded in November 1988 and is a federation of psoriasis patients’ associations based in the geographic region of Europe. As an umbrella organization operating within Europe, and as a Member of IFPA we have close ties to the worldwide psoriasis movements – the International Federation of Psoriasis Associations (IFPA), the United States-based National Psoriasis Foundation (NPF) and to the Nordic Psoriasis alliance (NORDPSO).
- the GRAPPA patient network.
(GEU) is a Dutch non-profit which delivers the activities GRAPPA in Europe. GRAPPA is an international consortium comprised of 600 rheumatologists, dermatologists, radiologists, epidemiologists and patient representatives who contribute to the field of psoriasis and PsA. GRAPPA is focused on research, on new assessment tools, education and developing treatment guidelines for psoriasis and PsA. GEU furthers the work of GRAPPA in Europe, notably in research into psoriasis and PsA..